ADAO founder draws from personal loss to fight asbestos disease, raise awareness

“For every life lost to asbestos, a shattered family is left behind.” This is the motto and the message of the Asbestos Disease Awareness Organization (ADAO) co-founder Linda Reinstein. Linda, who now serves as ADAO’s executive director, became an activist on behalf of the victims of asbestos disease in 2003, when her husband Alan was diagnosed with mesothelioma. He passed away in May 2006.


The Asbestos Disease Awareness Organization, which Linda established in 2004 along with co-founder Doug Larkin,  is a non-profit organization dedicated to serving as the voice for all asbestos victims. Its mission includes education, outreach, networking for asbestos victims, and especially working to accomplish a complete ban of asbestos in the United States. ADAO has gotten a U.S. Senate resolution to officially declare April 1 as Asbestos Awareness Day, and hosts an annual Asbestos Awareness Day Conference to increase awareness and help prevent future exposure.


This year, the Acting Surgeon General Steven K. Galson supported National Asbestos Awareness Week, the first week of April, and issued a statement about the deadly health hazard posed by asbestos.


Since co-founding ADAO, Linda has globally united countless individuals and families who have been affected by asbestos related diseases, including mesothelioma and asbestosis. She also has worked to produce awareness materials including a slide show called “Asbestos Kills,” and other educational materials including an internationally distributed online book, “Reflections,” which features articles from renowned global experts.


Last week, the ADAO launched a new resource center page on its web site, and issued a call to action for those of us in the mesothelioma community to push for a complete ban on asbestos in the United States by contacting our Congressional representatives.


There is an easy way to do it – just visit www.banasbestos.us and click on the link that says “Write Your Congressman,” which is on the home page. This will take you to a form you can fill out, and it will automatically send the message to your Congressional delegates. Remember, YOU shoud be THEIR voice on Capitol Hill!


“I need them to feel our pain,” Reinstein said. “Asbestos victims – patients, families, caregivers -  are turning their anger to action, across the nation, working for the difference we can make, together.”

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